This is a hybrid event (both in person and virtual). There will be a signature drink, food, cocktails, live and silent auction, music and a tribute to Dr. Samya Nasr at the University of Michigan for her work in Egypt with CF patients. The cost is $125.
The Dad’s retreat is in person at a Top Golf in Auburn Hills, Michigan.
The cost is $35 for golf, non alcoholic beverages and food. You don't have to be a golfer to attend.
A garden party for CF caregivers (moms, aunts, grandparents) via Zoom! Join on Thursday, August 5 for the virtual Time to Breath: A Garden Gathering at 7:00 pm.
Join The Bonnell Foundation for a discussion on discrimination and health care.
Join Emily’s Entourage for an exclusive interview with Emily Kramer-Golinkoff, EE Co-Founder and Rebecca Jarvis, ABC News Chief Business, Technology & Economics Correspondent.
May is Cystic Fibrosis Awareness Month. The Bonnell Foundation is hosting the first CF Awareness Film Festival. The pandemic has more people aware of what life is like for someone living with CF. We want you to tell your story on film.
The pandemic has increased the stress families in the rare disease community are experiencing.
Please join The Bonnell Foundation for “Manage Stress and Promote Self Care” on April 21 at 7pm ET.
Can an economist determine whether you or your loved one receives breakthrough cystic fibrosis treatments? What is the Institute for Clinical and Economic Review (ICER) and why does it have so much influence on health plan coverage policy?
Join us for a 30 minute webinar hosted by the Institute for Patient Access and the Cystic Fibrosis Engagement Network as we discuss what ICER is, how it influences health care policy and what you can do to help cystic fibrosis patients and families as ICER begins its review of the latest cystic fibrosis treatments, including Trikafta.
